Hvussu uppliva avvarðandi at eldri heimabúgvandi persónum við demens tørvin á stuðli í gerandisdegnum: Ein kvalitativ kanning The experience of everyday support needs amongst informal caregivers of elderly people with dementia in home care settings: A qualitative study

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Published Aug 25, 2025
Sára Skylv Reinert Elisabeth Anthoniussen

Abstract

Supporting the growing number of individuals with dementia living at home poses challenges for informal caregivers, healthcare professionals, and service providers. Informal caregivers play a crucial role in enabling these individuals to remain at home, but this responsibility places significant demands on them, emphasizing the need for greater support. This qualitative interview study was conducted in the summer of 2021, inspired by the 2020 Alzheimer’s Association survey. The aim was to explore informal caregivers' daily experiences, with a focus on their support needs and perceptions of available services. Three key themes emerged: (1) the need for more knowledge, (2) improved access to services, and (3) support from social networks. Findings highlighted a strong need for understanding the disease, its progression, and managing behavioural issues. While caregivers’ needs for information, education, and counselling were partially met, peer support groups were notably absent. Caregivers also found services too standardized and not sufficiently tailored to their specific needs, stressing the importance of social networks in providing essential day-to-day support.

Úrtak

Tað er ein avbjóðing fyri avvarðandi, heilsustarvsfólk og tænastuveitarar at veita stuðul til vaksandi talið av heimabúgvandi persónum við demens. Leikluturin sum avvarðandi kann vera avgerandi fyri, at eldri við demens kunnu halda fram at búgva í egnum heimi. Hetta kann merkja, at avvarðandi koma at kenna øktan tørv á stuðli fyri at kunna liva upp til henda leiklut. Ein spurnablaðskanning gjørd fyri Alzheimerfelagið í 2020 kveikti hesa samrøðukanning, ið varð gjørd á sumri 2021. Endamálið við samrøðunum var at kanna upplivingarnar hjá avvarðandi í mun til mettan tørv á stuðli í gerandisdegnum og hvussu hesin tørvur varð nøktaður við verandi tænastum. Greiningin av samrøðunum vísti á trý høvuðstema: (1) tørvur á meiri vitan, (2) tørvur á atgongd til tilboð og tænastur, og (3) at finna stuðul í sosialum trygdarneti. Niðurstøðan vísti, at avvarðandi hava tørv á meiri vitan um demens-sjúkuna, sjúkugongd og handfaring av atferðarbroytingum. Tørvurin á kunning, undirvísing og ráðgeving varð partvíst nøktaður, meðan tørvurin á avvarðandibólkum ikki varð nøktaður. Avvarðandi upplivdu, at tilboð og tænastur vóru ov standardiserað, og tí ikki nøktaðu tørvin hjá tí einstaka til fulnar. Sosiala trygdarnetið hevði stóran týdning í gerandisdegnum.

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Keywords

Dementia, informal caregiver, experience, support needs, support services, upplivingar, avvarðandi, demens, stuðul, tænastur

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